[Back]

F. Nunes, G. Fitzpatrick:
"Understanding the Mundane Nature of Self-care: Ethnographic Accounts of People Living with Parkinson's.";
Talk: CHI'18, Montreal, Canada; 2018-04-22 - 2018-04-26; in: "Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18)", ACM Press, (2018), ISBN: 978-1-4503-5620-6; 1 - 15.

Self-care technologies have been influenced by medical values and models. One of the values that was acritically incorporated was that self-care was medicalised, and, as a result, technologies were designed to afford use with clinicians and fit structured medical processes. This paper seeks to broaden the understanding of self-care in HCI, to acknowledge the mundane ways in which self-care is achieved. Drawing on in-depth interviews with patients and carers, and online ethnography of an online community, we describe how the self-care of Parkinson's is mundane. The fieldwork contrasts with more medicalised perspectives on self-care, thus we discuss the properties of a self-care concept that would acknowledge its mundane nature. Our hope is to sensitise designers to identify the mundane ways in which self-care is performed and, consequently, design technologies that better fit the complexities of everyday life with a chronic condition.

Self-care; self-management; chronic care; Parkinson´s disease; self-care technology; health

http://dx.doi.org/10.1145/3173574.3173976

https://publik.tuwien.ac.at/files/publik_275881.pdf